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The cure for blood cancer is in the hands of ordinary people.

Preliminary search: Have you been contacted?

Posted August 4th, 2011 by Be The Match and filed in Donor Stories
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Every day about 300 Be The Match Registry ® members are sent emails and letters letting them know they have appeared on a preliminary list of potential matches for a patient. If you receive one of these emails or letters, there’s just one thing for you to do — contact us right away.

Here’s why: The patient and their doctor are trying to determine treatment options as quickly as possible. By contacting potential donors early in the search process, Be The Match ® provides the patient’s doctors with a more realistic list of possible matches who have indicated their willingness to move forward.

In our continual work to improve the donor search process for patients and doctors, Be The Match started the Preliminary Search Donor Contact Program last August. The goal is to contact potential donors most likely to be a patient’s match before the patient’s doctor makes selections for further testing. When outreach is made, registry members whose health or commitment to donate have changed can be removed from the list, and those who are ready and available to go forward can confirm their commitment. This information will be available to patients’ doctors as they select potential donors for further testing, helping to speed up the search process.

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Searching for a donor can be stressful and emotional for patients. This program is helping to make the process as easy and positive as possible for the patient in need.

Registry members who appear on a patient’s preliminary search list are strategically selected for contact.

We hear back from many of the potential donors promptly and do additional outreach to try to reach those who don’t respond. Results from the program have shown that early contact with potential donors is helping patients find the match they need more quickly.

When you respond to an email or letter telling you that you’ve appeared on a patient’s preliminary search list, we’ll help you understand the donation process. If you confirm your willingness to move forward, we’ll ask you some questions to rule out health concerns that might prevent you from donating.

Because the search process is in the early stages, the patient’s doctor may or may not request you for additional testing. About one in five donors contacted will be asked to proceed to the next stage.

If you receive a letter or email saying you are part of a patient’s search results, please contact us right away. It’s usually just a 10-minute call, and we’re here evenings and weekends. Quickly letting us know you’re ready and willing (or not) to move forward is an important way you can help us better serve patients in need.

Thanks for your kind words, Tanya. Sorry to read about your rheumatoid arthritis but so happy to see that instead of letting it bog you down, you’ve chosen to share the small victories on your blog as you raise your 3 kids and inspire others to chin up as well. That’s so motivating. Keep up the great work!

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Kaila says

Fabulous ideas-and great links! I want to try some of those breakfast recipes.

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Right? I’ve promised myself that I’ll try making some of those healthy breakfast bars at home. I don’t know though. When you try some of those recipes, let me know how it goes… maybe that will kick me into action

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Just made mini veggie quiche- I mixed leftover fried veggies with eggs, flour, and salt, and baked them in little ready made pie shells. Yum!

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Mmmmm… that does sound yummm (especially right now — it’s lunch time here and I haven’t yet figured out what to eat )

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Korinthia Klein says

For us it was a matter of narrowing down just a couple of things that were slowing us down at the last moment. For instance, we have a rule about how you can’t eat breakfast until you are wearing socks and shoes (because the search for socks and shoes when we should be heading out the door was ridiculous).

To avoid yelling, I sort of got into a routine that didn’t involve having to directly interact with my kids (once they reached ages where they didn’t need my help with getting themselves ready). So I get up first and start turning on lights and making noise without specifically telling anyone to get up. Then I go down and make breakfast (we usually do pancakes or French toast) and during that time they start stirring. I ring a bell to call them down to eat, and usually pass them on the stairs as they come down and I go up to get myself ready. They are in charge of their own bags and they buy lunch at school so I don’t have to deal with any of that. (Somewhere in there are kisses and hugs.)

The Montessori quote is apt. As long as they have ample time to go at their own pace, kids are capable of doing a great deal for themselves.

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